Laws That Affect Your
Ability to Give Care
Bills are being passed right now that change what you're entitled to, what you'll be paid, and what services your family can access. We track them so you don't have to.
Find bills in your state
Oregon HB 2024 — Caregiver Compensation Reduction
What this means for your family
This bill reduces compensation for live-in caregivers by $4–8/hour starting 2027. Most families have no idea this is happening. If you rely on paid in-home caregiving in Oregon, this directly affects your family's ability to keep help.
What you can do
Contact your Oregon state representative. Tell them caregivers can't absorb another pay cut. Find your rep at oregonlegislature.gov.
California SB 1234 — IDD Services Expansion Act
What this means for your family
This bill expands eligibility for In-Home Supportive Services (IHSS) to cover more IDD diagnoses and increases the monthly service hour cap by 20%. If passed, thousands more California families would qualify for paid in-home care.
What you can do
Contact your California state senator and express your support for SB 1234. Share your personal story — it matters.
Texas HB 890 — Medicaid Waiver Waitlist Transparency
What this means for your family
This bill requires the state to publicly report Medicaid waiver waitlist times by region and publish quarterly updates. Texas currently has one of the longest waitlists in the country — some families wait 10+ years. This bill won't shorten the list, but it forces transparency.
What you can do
Call your Texas state rep and ask them to support HB 890. Transparency is the first step to fixing a broken system.
New York A4521 — Direct Support Professional Wage Act
What this means for your family
This bill raises the minimum wage for direct support professionals (DSPs) to $22/hour. DSP turnover in New York is over 40% because the pay is too low. If your loved one depends on a DSP, this bill could help keep them.
What you can do
This passed the Assembly. Now urge your state senator to bring it to a vote. Share on social media to raise awareness.
Florida SB 678 — iBudget Funding Freeze
What this means for your family
This bill freezes iBudget funding at 2024 levels through 2028, meaning no adjustments for inflation or increased need. For families on the iBudget waiver, this means the services you receive today may cost more out-of-pocket tomorrow.
What you can do
Contact your Florida state senator. Explain how frozen funding doesn't mean stable services — it means less care.
Ohio HB 155 — Family Caregiver Tax Credit
What this means for your family
This bill creates a $3,000 annual tax credit for family caregivers of individuals with IDD who provide at least 20 hours/week of unpaid care. It won't make caregiving easy, but it recognizes the financial sacrifice families make.
What you can do
Write to your Ohio representative in support of HB 155. Include specific caregiving costs your family absorbs.
Colorado SB 45 — Supported Decision-Making Act
What this means for your family
This bill establishes a formal framework for supported decision-making as an alternative to full guardianship. For families who want their adult children to retain more autonomy while still having support, this is a significant step forward.
What you can do
This is now law in Colorado. If you live in Colorado, learn how supported decision-making might work for your family.
Pennsylvania HB 3012 — Respite Care Access Act
What this means for your family
This bill mandates that every county in Pennsylvania offer at least one publicly-funded respite care option for IDD families. Currently, many rural counties have zero options, leaving caregivers without any break.
What you can do
Contact your PA state rep. If you live in a county with no respite options, share your story — it's powerful.
Georgia HB 701 — Provider Rate Restructuring
What this means for your family
This bill restructures Medicaid reimbursement rates for IDD providers, but early analysis shows most community-based providers would see a rate decrease. This could lead to provider closures in underserved areas.
What you can do
Attend the next committee hearing or submit written testimony. Ask your rep to demand an independent fiscal impact study before any vote.
Michigan SB 312 — Aging Out Support Extension
What this means for your family
This bill extends school-based transition services for students with IDD from age 26 to age 28, giving families two more years to prepare for the shift to adult services. The 'cliff' that families face when school ends would be softened significantly.
What you can do
Contact your Michigan state senator and urge them to co-sponsor SB 312. Two extra years can change a family's trajectory.
This page is for informational purposes only and does not constitute legal advice. Bill summaries are written in plain language by our team to help families understand potential impacts. Always consult the official bill text or a legal professional for authoritative information.
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