Resources
Trusted organizations, tools, and information to support individuals with IDD and their families.
Wellness & Self-Care
AAIDD – American Association on Intellectual and Developmental Disabilities
Leading organization setting standards for IDD practice, policy, and research. Great for understanding diagnoses and support systems.
Family Caregiver Alliance
Tools, guides, and fact sheets specifically for caregivers supporting individuals with disabilities, including wellness resources for families.
NADD – National Association for Dual Diagnosis
Resources for individuals with IDD who also have mental health needs. Excellent for families navigating co-occurring conditions.
Legislation & Rights
Disability Rights Advocates
Nonprofit legal center that fights to advance the rights of people with all types of disabilities through landmark litigation.
National Council on Disability
Independent federal agency that advises Congress and the President on disability policy. Find the latest legislation and policy updates.
Wrightslaw – Special Education Law
Comprehensive resource on special education law and advocacy, covering IEPs, IDEA, Section 504, and parent rights.
Foundations & Nonprofits
The Arc
The largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families.
Special Olympics
Provides sports training and competition for children and adults with intellectual disabilities, building confidence and community.
Become an Advocate
AUCD – Association of University Centers on Disabilities
Network of disability-focused research centers. Great starting point for families who want to get involved in research and advocacy.
Self Advocates Becoming Empowered (SABE)
A national self-advocacy organization run by and for people with disabilities. Empowers individuals to speak for themselves.